Showing posts with label Topomax. Show all posts
Showing posts with label Topomax. Show all posts

Thursday, 10 October 2013

More of the expat life...

Lots of paintbrushy stuff recently, I hardly post about my expat life here in Oman. Admittedly art has become a new passion of mine, whether teaching it, viewing it or making it. So forgive me if it's art-heavy over here. It makes me smile.

But the 'pedicures' side of life here continues. Not so many of those really. No time. It's not all relaxing by the beach or the pool, kindle or costa in hand. It's all about the kids now. Clubs every day. Rugby, guitar, football, sailing, choir. I'll fit my Gaelic football, golf and yoga in, hubby'll get to play rugby and bike ride at some point. It's none stop. I'm shattered. But it's through our own choosing. I am not complaining. I could quite easily stop the kids' club or not go to mine. But why do that? The kids have told me what they want to do, we've discussed limits and tiredness and making sure we have one quiet early night a week. We have a balance. Life's good.

But I'm still shattered. Weird feelings and pressure in my head. The meteoropath in me??

So I've decided to do something about it rather that make an action list to do something about it. Today I went to see a cranialsacral therapist. I'd heard of it as a young mum, great for babies etc. it was recommended to me for my migraines. So I thought I'd try it for my general 'unwellness'.

Interesting practise!
 
She basically manipulates and feels for the membrane between my head and my sacrum in my lower back and feels the vibrations and tensions. I didn't feel anything astounding or health changing but the fact she was noticing certain things in my body that I hadn't told her about told me that she was hitting the spot.
 
I'm still on the Topamax and after the neurologist increasing my dosage because the migraines hadn't disappeared as expected and this increase in dosage in turn coincided with another day with 4 auras, I knew I had to action my action list!
 
I can but try.

Tuesday, 21 May 2013

Well...that could have gone better.

My evening:

* The neurologist denies any link between Topamax and kidney stones despite it being disseminated through the medical information on the leaflet in the medication box. But was kind enough to refer me for an ultrasound.

* I have a kidney stone. I knew it. I've been aching for days It's only 3.6mm. My last one was 1.8cm.

* The first hospital pharmacy don't have my prescription. But Scientific pharmacy in al Khoud should do and will honour my insurance.

* Finally found it but it is shut as its prayer time. Wait 20 minutes. They don't have it. Badr al Samaa do and should honour my insurance.

* Starting to get twitchy now. My battery is very low. GPS and 3G is not working. I get lost.  Majorly lost. Never been to Maballeh. At least it was the right end of town.

* Strangely and bizarrely and somehow will never know how, I pop out next to the road that leads to Badr al Samaa, so I make my way there.

* The Pharmacy assistant looks at my forms. Talks to his colleague. I need a doctor's stamp and a hospital stamp actually on the insurance form. I've been in and out of hospital these last few months and in and out of pharmacies and have never been asked for a stamp on that form.

* For the first time in my adult life, as far as I can remember, I make a scene. I raise my voice. I shout. I recount my whole evening to the poor assistant (although at that moment in time he is not poor in my eyes; he is doing this on purpose to tease this expat woman and wind me up). I snatch the form from his hand, wordless, and storm from the pharmacy. I even manage to slam the door open on my way out. I am seething. I am sobbing.

* At least I am not lost now but I still sob all the way home. Angry and embarrassed.

* I manage to calm myself down. I am concerned that I may not get the medication for some time, I don't want to be off it, for it to come out of my system and for me to have to go through the struggle of getting used to it again.

Next morning:

* Form stamped by Starcare.

* Enough time to get to Badr al Samaa before work. And chances are the staff last night won't be on shift.

* Two lovely ladies are behind the counter. Yes. I can avoid further embarrassment.

* I have to get get my file number from the front desk before she can do anything. Oh FFS.

* But I manage to avoid the queues and nip to the billing man and he kindly helps me.

* Back to the pharmacy. A voice on my left.."So you went back to the hospital last night then to get the stamp?" O. M. G. At least it's just one of the staff from last night.

* No, of course it's not. This is me you're reading about. I walk in and number one who spoke to me goes and joins his two colleagues behind the counter so all three of them are standing there. I apologise profusely and I'm not sure but the one I spoke to last night either does not speak a lot of English or he really is pissed off with me.

* The lady gives me my prescription and I'm done. I give a final big apologetic smile as I leave and he stands up and returns it.

I think I'm OK now. Really, was all that necessary....? 

Mantra for last night should have been 'This too shall pass'.

Much like my kidney stone, I hope.

Monday, 20 May 2013

Topomax and me...the update.

It's been 30 days now of 50mg dosage at night.

I had to read about the drug online after I left the doctor as he told me very, very little about it.

I've stopped reading about people's horror stories online, of how they feel psychotic, of their hallucinations, or how they woke up not remembering where they were, or how their hair was coming out in clumps, of how their goddamn diet soft drink tasted awful (of how many people was this an important health factor??) F*ck....

I've realised that these people are probably on a much higher dose and maybe have been put straight on to that dosage rather than being 'titrated' up. My new word....! Titration: noun, incremental increase in drug dosage to a level that provides the optimal therapeutic effect (Mosby’s Dental dictionary, 2nd edition. 2008 Elsevier. From medical-dictionary.thefreedictionary.com

Within the first two weeks I was ready to come off them. I felt so uncomfortable. Extreme pins and needles in my toes and fingers (which I still get. Extreme, I mean, numbness lasting half an hour…it’s hilarious). I felt completely out of it and I think the first day, I went into work, saw one of the teachers about my son, giggled inanely for a bit and told her I thought I was stoned. Luckily she just giggled back at me. (It’s that kinda school). I felt dazed and unable to focus on words on a page. I like reading stories to the class if it can introduce the art topic in some way. So this was a nightmare. I almost resorted to giving them all a colouring-in sheet, put my head under the desk in the rubbish bin and be done with it.

Being the good patient that I am (but mostly having the bossy but logical husband that I have) I had to see the month through. And I am glad I have. The overriding feeling is that my head fog has started to clear. I had become aware that I was in a subtle but gradually worsening dizzy fog for the last two or three years or so. I wake up less tired and I have more energy through the day as a result.  I feel like some electrical pathway has been cleared in my brain, subtle but enough to feel different. Insomnia was a reported issue but actually I feel I sleep ok and maybe that’s why I’m less tired rather than any electrical impulse is being changed.

BUT having said that, I went to a GP before I was put on Topomax, regarding my dizziness and she linked it with migraines. I had never heard of this link so I did my research and it’s all over the internet, I’ve had migraines since a teenager and I had never read of this. I wonder if this is my body changing and my migraines are coming out in different ways now. Have I been suffering with migraines these last few years in this way as well as the classic way and have not treated it? So, therefore, it feels she could have had a point and Topomax has helped.

My only concern is that I have a history of kidney stones. Which the doctor failed to ask check about (I actually have little faith in him tbh…so my review with him this pm should be interesting. Let’s see if he sniggers at my questions today…last chance and then I’m off to the other hospital). Topomax is more likely to bring about kidney stones…wonder what his response will be. But overall, it’s changed me. Although I am dopey as anything and the memory certainly is affected.

Friday, 12 April 2013

Topomax and Me...it begins.

Tonight I start taking my prescribed Topomax.

I am not looking forward to this having read about the horrid side effects...memory loss (like I can afford to lose any as it is) and hair loss (ditto) amongst others. I have a history of kidney stones and these could be a side effect too. The pharmacist mentioned I may need to keep an eye on liver function.

I actually said to hubby that I really did not want to take them. But he reminded me just how low I've been and that I've been at my wits end this last week. I can but try. I really hope it doesn't affect my teaching.